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October 2022

Integration toolkit (1st Edition)

The integration of the ERNs and national health systems refers to the set of policies, rules and procedures required to anchor the ERN system to the national level so that all patients with a rare disease or complex condition across Europe can benefit from this model. This toolkit is organised around 5 blocks of action at national level. For each area, the document collects the processes, tools, templates and best-practice examples to support the rare disease patient community engagement in the journey towards integrating ERNs into each national health system.