Eurordis - Rare Disease Europe

Rare Barometer benefits from the input of its Advisory Committee. This is a consultative committee comprised of expert individuals from a range of backgrounds (academia, corporate, policy). Final decisions on future topics to be explored through the programme are made by EURORDIS.

For each survey, an ad-hoc topic expert committee comprised of individuals with relevant expertise in the topic is created.

Are you interested in collaborating with us? Do you want to suggest a survey topic? Contact us at rare.barometer@eurordis.org.