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September 2022

Brussels Rare Disease Week 2023


© European Union, 2021

Welcome to the Rare Disease Week 2023 !

EURORDIS is delighted to welcome you soon at the second edition of the Rare Disease Week (RDW) ! After a virtual edition in 2021 that brought together more than 30 patient advocates, we are excited to announce that the RDW 2023 will finally be held in-person at the heart of Europe in Brussels.

The goal of these four-days series of events is to empower rare disease patient advocates with knowledge and skills enabling them to effectively participate in advocacy activities at the EU level and, as a result, to influence the EU decisions that have a direct impact on their lives. 

Through RDW, the hope is also to raise awareness of rare diseases amongst EU decision-makers and present a strong and united message to MEPs and other policy-makers in Brussels on behalf of the rare disease community.

Below, you will find more information about the event (programme, practicalities, webinars etc) that will be regularly updated. 

When?

The RDW itself will be held from Monday 06 February to Thursday 09 February 2023, in the lead up to Rare Disease Day 2023 (28 February). The stay in Brussels is preceded by an online mandatory programme composed of 2 training modules and 3 webinars. 


Programme

Brussels RDW 2023 schedule of events in Brussels 

To be announced shortly

Preparation

In preparation for the week, participants will be invited to take a mandatory training course (online) of approximately 2 hours and to participate in 3 preparatory webinars (online)

Webinar 1

Welcome + Meet the EU institutions
(18 November from 2:30 pm to 4:30 pm CET)

Webinar 2

Advocacy and Skills Webinar
(28 November from 2:30 pm to 4:30 pm CET)

Webinar 3

Building a coordinated advocacy message
(17 January from 2:30 pm to 4:30 pm CET)

The links to the webinars will be sent by email to all participants.

Practicalities

To be announced shortly

Contact

For any questions, please contact: