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Podcast: Rare on Air

In our new monthly podcast, Rare on Air, our Communications Manager, Julien Poulain, meets with people who live with a rare disease, those who advocate for them, and experts on rare disease policy.

The podcast explores the unique experiences, challenges and successes of people from our community, and investigates how we can build a better world for those who have a rare condition.

Each episode focuses on a specific theme or policy area relating to the work and advocacy of EURORDIS.

Listen to Rare on Air on Spotify, Apple Podcasts, Amazon Music or Google Podcasts.

Share with us your feedback by emailing, and join the conversation on social media using the hashtag #EurordisRareOnAir.

Latest episode

Rare on Air: All episodes

ERNs on Air: All episodes

Rare Disease Day Stories: All episodes

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Contact us

Email the EURORDIS Rare on Air team at:

Contact Person

Julien Poulain
Communications Manager

Julien Poulain