Skip to content
Generic filters
Exact matches only
Search in title
Search in content
Search in excerpt


EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 1000 rare disease patient organisations in 74 countries. EURORDIS works to build a strong pan-European community of patient organisations and people living with rare diseases

Download the list of EURORDIS Member Associations.

EURORDIS Members by country

Find a member

Use controls below to filter your results.

Contact EURORDIS about our members

Anja Helm,
Senior Manager of Relations with Patient Organisations

Anja Helm