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EURORDIS Membership Meeting (EMM) 2023

Февраль 2023

We hosted the 2023 EURORDIS Membership Meeting (EMM) in Stockholm, Sweden from Thursday, 25 May through Saturday, 27 May. The event provided an engaging and lively discussion on the road towards a holistic approach to addressing the needs of people living with a rare disease and ensuring their full inclusion in society, with much missed in-person opportunities for exchange.

This year’s EMM came at a critical time for Europe, as EU institutions revise milestone legislation for rare diseases – on pharmaceutics and paediatrics – and pave the way for new legislative frameworks, including the European Health Data Space and the European Strategy on Mental Health.

The Membership Meeting’s programme focused on the most relevant and cutting-edge issues impacting the lives of the 30 million Europeans living with a rare disease and their families, including digital safety and literacy, mental well-being, the role of digital healthcare and associated opportunities and risks, and disability recognition.

Throughout the three-day programme, we featured EMM’s hallmark Lifelong holistic approach and full inclusion in society«, workshop and networking moderated sessions. 

Attendees benefited from excellent networking opportunities and knowledge exchange with their peers. 

EURORDIS Membership Meeting 2023 Stockholm

Plenary 2023

With thanks to our corporate donors