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RARE CANCER AGENDA 2030 – Ten Recommendations from the EU Joint Action on Rare Cancers
Rare Cancers Europe, a collaborating partner of the recently completed EU Joint Action on Rare Cancers (JARC), is committed to take over the JARC legacy and to support the rare cancer community towards the effective implementation of the Joint Action’s overarching deliverable, namely the Rare Cancer Agenda 2030. In the next years RCE will continue […]
Rare Cancers and Rare Diseases: Similarities and Differences
ECPC-EURORDIS joint workshop on rare disease/cancer patient registries
MEPs unite in call for a European Action Plan on Rare Diseases
EURORDIS responds to the European Parliament debate on a European Action Plan on Rare Diseases.
No More Waiting: MEPs insist on action at Rare Disease Day event
Policymakers, patient advocates, and healthcare leaders gather at the European Parliament to urge for EU action
Rare Disease Day 2025 – You Can Do More Than You Can Imagine!
On 28 February, the world will unite for the 18th edition of Rare Disease Day! How can you get involved?
European Parliament Event on Rare Disease Day
Throughout the event, we will: Watch the event Programme View programme as a PDF Setting the scene: 13:30-14:00 Introduction MEPs Adam Jarubas (EPP, Poland) & Stine Bosse (Renew, Denmark) Introduction and welcome Rare Disease Day 2025 official video Watch the video Setting the sceneAdéla Odrihocká, Rare Diseases Czech Republic Reflection key results from EURORDIS Rare […]
Advocacy in action at Rare Disease Week
We highlight the empowering experiences of past participants at Rare Disease Week, where advocates reflect and share their aspirations for driving change.
EURORDIS: Greater focus needed on rare diseases in EU health mandate
EURORDIS responds to the unveiling of new European Commission portfolios.
Claudia Fuchs: The potential of drug repurposing in rare diseasesÂ
Claudia Fuchs, our Drug Repurposing Projects Senior Manager, is inviting manuscripts for a special journal issue on drug repurposing.