Veronica joined the EURORDIS team in October 2020 as Digital Patient Engagement Manager.
She is responsible for the coordination of the DAG, the Digital and Data Advisory Group which is a group of patient advocates, and legal and digital experts. She is also in charge of digital aspects in the context of the rare disease health environment.
Veronica is a patient advocate for MCT8 Deficiency. She is also chairing the MCT8-AHDS Foundation, a worldwide organization dedicated to children affected by MCT8 Deficiency.
She speaks English, Romanian, Greek and conversational French and Spanish. She holds a master’s degree in Marketing and Business Communication and a diploma in UX design.
Email: veronica.popa@eurordis.org