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November 2012

The Executive Summary of the European Conference of Rare Diseases & Orphan Products is out


Did you know that ECRD 2012 Brussels recorded the highest participation since the first ECRD in 2001 with 649 delegates from 45 countries on site? Did you know that there were also delegates from outside Europe from USA, Canada, Japan and Argentina? Did you know that there were 131 speakers, across 36 sessions with a high representation from patients, the health industry and health professionals? 

You will find this and more in the Executive Summary of ECRD 2012 Brussels – now available in a new format, more concise and timely. Find out the key facts and figures of the most important rare disease meeting in Europe. Read summaries of the Opening and Plenary sessions, with memorable quotes from keynote speakers, as well as the highlights of the presentations and discussions organised across the seven theme tracks of the Conference: National Plans for Rare Diseases, Centres of Expertise and European Reference Networks, Information and Public Health, Research from Bench to Bedside, Access to Orphan Products and Rare Disease Therapies, Regulation of Orphan Products and Rare Disease Therapies, and Patients’ Empowerment.

The report includes the main features and statistics of the Conference, the programme at a glance, a list with photos of the Programme Committee, a list of posters’ titles and authors, as well as the poster winner and descriptions of exhibiting companies. Read the Conference Report.

ECRD 2012 Brussels

The 6th European Conference of Rare Diseases & Orphan Products, entitled “A better future for Patients: Shaping together the Agenda 2020” took place on May 23-25, 2012 at the Management Centre Eu

rope (MCE) Conference Centre in Brussels, Belgium. Speakers, presentations and poster abstracts can be found in the Programme section of the official website: www.rare-diseases.eu

ECRD is a unique forum addressing all rare diseases, across all European countries, bringing together all stakeholders: academics, health care professionals, industry, policy makers, and patients’ representatives. It is a biennial event, providing the state-of-the-art of the rare disease environment. It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels.

Don’t miss the 7th ECRD in Berlin, Germany in 2014! Dates and venue will be announced soon.