VI ALPE Awards for the best work in favor of people with ADEE, June 2024
June 2024The ALPE Awards were established in 2012 to recognize the efforts of people, institutions, researchers and social entities to make visible, include and improve the quality of life of people with Achondroplasia and other Skeletal Dysplasias that lead to Dwarfism (ASDD).
The independent Jury, meeting on May 31, decided the awards in favor of the following winners:
- Begoña Bascarán, Bascarán Audiology Clinic, in the Institutional category
- Cristina González Villar in the Personal category
- APTAA, Association for the Promotion of Adapted Tourism, in the category of Social Entity
- Dr. Josep María de Bergua Domingo, in the Research category
What are the ASDD?
ASDD are a series of spontaneous genetic alterations, included within rare diseases due to their low incidence, with serious consequences for health and a social stigma associated with dwarfism that makes the development and vital inclusion of people born with them difficult. Achondroplasia is the most common of up to 600 different dysplasias.
About the ALPE Foundation
The ALPE Achondroplasia Foundation, created in 2000, works from a holistic perspective in the fields of health, education, social activism and patient representation to improve the quality of life of those affected and their families, all from its headquarters in Gijón, but with an international scope of action. All its services are free for beneficiaries.
About the ALPE Awards
The ALPE Awards, held biannually, except during the pandemic, have recognized the work of journalists, companies, hospitals, clinical professionals, researchers and people who have dedicated a large part of their lives to improving living conditions in different ways. of this group.
Awards Gala
The Awards Gala, with cocktail and music, is also an event to raise awareness of the ADEE and the ALPE Foundation. It will be presented by the journalist Liborio García Ferreiros and will take place at La Industrial de La Blonda, in Madrid, on June 11 at 8:30 p.m.
For more information:
Susana Noval, director: 677426120
ALPE Achondroplasia Foundation: acondro@fundacionalpe.org