Eurordis - Rare Disease Europe

Webinar: Digitisation of healthcare in the European Union

13:00 to 16:00 CET, Thursday 7 September 2023

Audience: Rare disease patient organisations from non-EU countries, particularly those based in Eastern Europe

Language: Russian

Location: Online

Registration: Email Hanna Boiko, Programme Manager for the EURORDIS Ukraine Response, at .

Join EURORDIS for an insightful webinar on rare diseases, the EU’s general framework for digitising healthcare, and how patient representatives themselves can advance progress. 

The webinar will cover the topics of:

• The general framework of the EU’s healthcare systems and their digitalisation 
• The experiences of Ukrainian, Georgian and Moldovan rare disease patient organisations with healthcare digitalisation in their countries.
• The European legislative framework for health data protection & the EU’s accession process
• The role of patient organisations in the digitalisation of healthcare.

Speakers will include Jelena Malinina, Data Director at EURORDIS, and Hanna Boiko, Programme Manager for the EURORDIS Ukraine Response.

Email Hanna Boiko at hanna.boiko@eurordis.org for more information.