Webinar : How do rare conditions impact family and social relationships
November 2024
Family, peer and social relationships are key for mental health and emotional wellbeing. Relationships within a family are impacted in diverse and complex ways when a family member (or members) live with a rare condition. Family relationships can be complicated at the best of times, and both the diagnosis of, and living with, a rare condition adds an additional layer of complexity. Every family member is impacted by, and makes meaning of their experiences, over time in their own unique way. Individuals often face difficult (and sometimes conflicting) emotions about the impact of the condition on those they are close to, whether from the perspective of affected person, partner, parent or sibling. This emotional impact can extend across generations too.
Social and peer interactions can also involve challenges. A rare condition may evoke less empathy or support than a more common condition. Visible differences can lead to bullying, loneliness, or isolation; invisible disabilities ( whether physical, or neuro-cognitive/intellectual) may be either ‘forgotten’ , or misunderstood. The intensity of family relationships can at times become heightened as a result of unmet needs for social or peer support.
This webinar will explore how rare conditions shape and inform social and family relationships, drawing from the lived experience of affected individuals, caregivers and parents, and siblings. The outcome of the webinar will be a factsheet to help increase awareness about the impact of rare conditions on both social and family relationships, and how to support these.
💬 Webinar : How do rare conditions impact family and social relationships
➡️ Register now!
🗓️ 19 December 2024
⏰ 11:30 to 13:00 CET
Concept note