Eurordis - Rare Disease Europe

Rare Diseases Czech Republic (Ceska Ascociace Pro Vzacna Onemocneni)

Virtual Workshop addressing the rare diseases priority on the agenda of the EU Council Presidency, held by the Czech Republic

National plan for rare diseases: Czech Republic

Please find documents on/ relevant to the national strategy, action plans for rare diseases and EUROPLAN conferences in the Czech Republic listed below: Czech Republic_RD National Strategy_2010-2020_Czech Czech Republic_RD National Strategy_2010-2020_English Czech Republic_RD Action Plan_2012-2014_Czech Czech Republic_RD Action Plan_2012-2014_English Czech Republic_RD Action Plan_2015-2017_Czech Czech Republic_RD Action Plan_2015-2017_English EUROPLAN_2017_Czech Republic_Round Table_Report_English National contact:Česká asociace pro vzácná […]

21 Member States endorse Czech EU Presidency’s Call to Action on rare diseases at EPSCO Council Meeting

9 December, Brussels – The Czech Presidency of the European Union Council has today presented their Call to Action in the area of rare diseases at the EPSCO Council. The call received endorsement from 22 Member States, including the Czech Republic, representing 81,6% of the EU population. This is a strong indication of the support […]

Interview with Vlastimil Válek, Czech Health Minister, on a European Action Plan for Rare Diseases

On the occasion of the Expert Conference on Rare Diseases, organised in Prague on 25-26 October by the Czech EU Presidency, Czech Health Minister, Vlastimil Válek, gave an exclusive interview to EURORDIS on what a European action plan on rare diseases represents for his home country and Europe at large. “Without networks, without close cooperation […]

A EURORDIS report from the Czech Presidency Expert Conference on Rare Diseases

On 25 – 26 October the Expert Conference “Towards a New European Policy Framework: Building the future together for rare diseases” took place in Prague. This was an official event of the Czech EU Presidency, bridging a series of technical and ministerial gatherings on proposals for a renewed strategy for rare diseases following the Slovenian […]

EURORDIS-Rare Diseases Europe responds to Czech Presidency Call to Action on rare diseases calling for a European Action Plan for Rare Diseases

25 October 2022, Prague – A Call to Action on rare diseases, alongside a specific call to the European Commission for a European Action Plan on rare diseases, was today presented by Jakub Dvořáček, Deputy Health Minister of the Czech Republic. The Expert Conference is taking place in Prague, as part of the Czech EU […]

EURORDIS reiterates its call for harmonised newborn screening programmes across Europe at the Czech EU Presidency technical meeting

22 July, Paris – EURORDIS-Rare Diseases Europe will join a technical meeting, organised under the auspices of the Czech Presidency of the Council of the EU on 23 July, to call for harmonised newborn screening programmes across Europe. This would ensure universal and equal access to newborn screening, help attain the highest standard of health […]

Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency

1 July, Paris – Closing the European Conference on Rare Diseases and Orphan Products 2022, Czech Deputy Health Minister, Jakub Dvořáček gave a strong message to the European institutions and rare disease community, saying that the Czech Republic, which begins today its six-month EU Presidency, will “continue to support enhanced cooperation and coordination between EU Member States […]

EURORDIS launches the Social Policy Action Group (SPAG)

EURORDIS has today launched the new Social Policy Action Group (SPAG), which will support EURORDIS to shape policies relating to holistic care, and social and human rights for those with a rare disease.