ECRD 2014 Berlin offers participants an exciting agenda packed with cutting-edge topics

Jigsaw puzzleThe European Conference on Rare Diseases & Orphan Products (ECRD 2014 Berlin) is less than a month away. Have you registered yet? Offering the largest gathering of stakeholders dedicated to rare diseases in Europe, over 700 participants will join forces in Berlin on 8-10 May 2014 to explore cutting-edge themes including:

  • State of the Art & Innovative Practices in Orphan Products

  • Emerging Concepts & Future Policies for Rare Disease Therapies

  • Research from Discovery to Patients

  • Improving Healthcare Services

  • Knowledge Generation & Dissemination

  • Beyond Medical Care

With key opportunities for networking throughout the event, ECRD 2014 Berlin kicks off with the annual EURORDIS Membership Meeting on 8 May. Presenting a unique occasion to learn more about the initiatives that are defining the future of rare disease care, ECRD Berlin 2014 gathers patients, national and EU policy makers, members of industry, regulators, scientists, health professionals and other rare disease stakeholders.

The half-day Opening and Plenary Session along with other key Sessions will be available in a number of languages via simultaneous interpretation, reflecting the international dimension ECRD 2014 Berlin offers.

A packed schedule of sessions and workshops dedicated to the six exciting themes, and incorporating round tables, panel discussions, case studies and presentations, offer opportunities to exchange on patient experiences, needs and perspectives; evaluate new pathways for collaboration and partnership; explore challenges and experiences in disease specific registries, and learn about new modalities for improving access to medicines. Dedicated pre-conference tutorials provide an overview of specific topics that will be covered during the conference, including Health Technology Assessment; RD-Connect and rare disease data; supporting clinical pathways for medicines development; and the Orphanet database.

Visit the ECRD 2014 Berlin website – available in six languages – to find out more and reserve your place. Be a part of this vital event for the rare disease community! 

Louise Taylor, Communications and Development Writer, EURORDIS

Page created: 07/04/2014
Page last updated: 08/04/2014
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases