EURORDIS TVEURORDIS TV identifies and gathers the best rare disease-related videos into one convenient venue, organised into specific channels, including: News & Current Issues; Living with a Rare Disease; Patient Groups; Explaining Rare Diseases; Research; Orphan Drugs; Health Policy; Rare Disease Day; EURORDIS Events; and Non-English videos.

Each video on EURORDIS TV can be shared via Facebook or Twitter or embedded in a website or blog. We encourage you to share videos via your social media networks or your patient group. Each week a new "Video of the week" is highlighted on the EURORDIS homepage, as well as via the weekly EURORDIS eNews and the EURORDIS Facebook and Twitter networks. If you, your patient group, or somebody you know has a video for EURORDIS TV please email us at

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Page created: 23/07/2013
Page last updated: 06/11/2014
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases