New EURORDIS TV channel showcases rare disease videos in different languages

Television with flags of countriesEURORDIS TV is pleased to announce its new multi-language channel offering the best rare disease-related documentaries and videos in a variety of languages.

Launched in April 2013, EURORDIS TV is proving to be a popular feature on the EURORDIS website with 16,500 visits. Visitors have watched over 1300 hours of videos to date. There are now over 250 videos available for viewing and new videos are being added regularly.

Gathering rare disease-related documentaries and videos into one convenient location, EURORDIS-TV is organised into ten specific channels: News & Current Issues; Living with a Rare Disease; Patient Groups; Explaining Rare Diseases; Research; Orphan Drugs; Health Policy; Rare Disease Day; EURORDIS Events, and now Other Language Videos.

EURORDIS TV identifies and gathers the best rare disease-related videos from a variety of sources, including conferences, patient organisation websites, research projects, and other venues. The videos featured on EURORDIS TV can be shared via Facebook or Twitter or embedded in a website or blog, and you are encouraged to share relevant videos via your social media networks or your patient group. Each week a new "Video of the week" continues to be highlighted on the EURORDIS homepage, in the weekly EURORDIS eNews and via the EURORDIS Facebook and Twitter networks.

If you, your patient group, or somebody you know has a video for EURORDIS TV in any language, email us at

Louise Taylor, Communications and Development Writer, EURORDIS

Page created: 16/10/2013
Page last updated: 15/10/2013
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases