Take action

Find out how patient groups can get involved in EURORDIS activities.


Become a member

Join a vibrant pan-European community of dedicated people facing similar issues 


Get involved in Rare Disease Day

Find out more about Rare Disease Day and the many ways in which you can get involved


Join Rare Diseases International

Are you a national alliance or an international federation? Become part of the global network of rare disease patients today


Nominate an awardee

Throughout September and October every year you can nominate an individual or organisation that has made an exceptional contribution to the rare disease community

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases