Jelena Malinina joined EURORDIS in March 2022 as Patient Data Director, based in the Brussels office.
Her role is to lead EURORDIS work on data and represent rare disease patient voice in digitalisation of healthcare. Prior to joining EURORDIS, Jelena worked for the European Consumer Organisation, the World Health Organisation, healthcare consultancy, patient organisations and governmental public health organisation.
Through her work she developed expertise in healthcare digitalisation, personal health data protection and security, artificial intelligence, medical devices, healthcare systems innovation and public health advocacy. Jelena is a former member of the European Commission’s ehealth Stakeholder Working Group and a former member of the European Medicines Agency Patient and Consumer Working Party.
Jelena holds a Bachelor’s Degree in Public Administration from the Mykolas Romeris University in Lithuania and a Master Degree in European Studies from the University of Gothenburg in Sweden.
Jelena speaks Russian, Lithuanian, English, intermediate French and Swedish.