Get involved with EURORDIS activities!

Get involved toolkit EURORDIS is pleased to launch a new section on dedicated to how you as an individual, patient group or company can get involved with EURORDIS activities. You can:

Take action

Connect with others

  • Join a RareConnect online patient community or discussion group and discover a safe space in which you can connect with others living with a rare disease.

  • Connect with EURORDIS on social media.

Donate or organise a fundraising event

Get involved with EURORDIS – every effort you make and donation you give to support the rare disease community helps people living with a rare disease!

Eva Bearryman, Junior Communications Manager, EURORDIS

Page created: 26/04/2016
Page last updated: 02/05/2017
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases