Uber uns
Staff
The 55+ members of the EURORDIS team work across three offices in Paris, Brussels and Barcelona. They represent more than 18 nationalities and speak more than 19 languages.
We all share the vision of EURORDIS to enable better lives and cures for people living with a rare diseases.
Governance, Membership & European and International Advocacy
Yann Le Cam
Chief Executive Officer
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Marie Meunier
Senior Executive Assistant to the Chief Executive Officer
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Marine Hurard
Governance Senior Manager - EU Operating Grant Lead
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Anja Helm
Senior Manager of Relations with Patient Organisations
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Valentina Bottarelli
Public Affairs Director & Head of European and International Advocacy
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Simone Boselli
Public Affairs Director
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Raquel Castro
Social Policy and Initiatives Director
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Julie Pernet
European Public Affairs Senior Manager
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Ariane Weinman
Public Affairs Senior Manager
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Katarzyna Radwan
Team Assistant & Office Manager
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Operations & Communications
Michael Wilbur
Chief Operating Officer
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Rahul Waslekar
Operations Junior Manager
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François Houÿez
Information & Access to Therapies Director & Health Policy Advisor
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Julien Delaye
Patient Engagement Manager - HTA
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Virginie Hivert
Therapeutic Development Director
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Roseline Favresse
Research Policy and Initiatives Director
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Inés Hernando
ERN and Healthcare Director
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Jelena Malinina
Data Director
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Matt Bolz-Johnson
Mental Health Lead and Healthcare Advisor
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Concha Mayo
Mental Wellbeing Engagement Manager
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Andrea Cembrero Bonet
Patient Engagement Manager
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Rita Francisco
Survey Junior Manager
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María Cavaller Bellaubi
Patient Engagement & Therapeutic Development Senior Manager
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Claudia Fuchs
Drug Repurposing Projects Senior Manager
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Judit Baijet
Patient Engagement and Training Manager on the REMEDi4ALL project
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Edith Sky Gross (on leave)
Health and Social Science Senior Project Manager
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Gulcin Gumus
Research & Policy Senior Manager
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Marta Campabadal
Open Academy Manager
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Rachel Butcher
Open Academy Training Manager
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Veronica Popa
Digital Patient Engagement Manager
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Jessie Dubief
Social Research Director, Rare Barometer Programme Lead
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Andrea Osvoll
Communications Manager - Projects & Programmes
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Sharon Ashton
Open Academy & Events Director
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Brian Howard
Head of Philanthropy & Partnerships
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Martina Bergna
Events Manager
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Anne L’Heveder
Events Junior Manager
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Céline Schwob
Corporate Relations Director
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Anne-Mary Bodin
Resource Development Assistant
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Jo Marshall
Corporate and Donor Relations Manager
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Stanislav Ostapenko
Communications Senior Manager
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Julien Poulain
Communications Manager
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Rhiannon Walls
Communications Junior Manager
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Imène El Aini
Web Technology Junior Manager
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Lise Pernin
Communications Junior Manager - Rare Disease Day
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Finance & Support Services
Patrice Régnier
Chief Financial Officer
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Susan Foster
HR Support and Budget Manager
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Annie Rahajarizafy
Accounting Manager
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Corina Puls
Office Manager
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