Uber uns
Staff
The 55+ members of the EURORDIS team work across three offices in Paris, Brussels and Barcelona. They represent more than 18 nationalities and speak more than 19 languages.
We all share the vision of EURORDIS to enable better lives and cures for people living with a rare diseases.
Governance, Membership & European Advocacy
Virginie Bros-Facer
Chief Executive Officer
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Marie Meunier
Senior Executive Assistant to the Chief Executive Officer
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Anja Helm
Senior Manager of Relations with Patient Organisations
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Valentina Bottarelli
Public Affairs Director & Head of European Advocacy
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Solène Jouan
EU Public Affairs Manager
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Raquel Castro
Social Policy and Initiatives Director
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Julie Pernet
European Public Affairs Senior Manager
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Ariane Weinman
Public Affairs Senior Manager
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Rachel Butcher
Public Affairs Manager
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Operations & Communications
Michael Wilbur
Chief Operating Officer
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Rahul Waslekar
Operations Junior Manager
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François Houÿez
Information & Access to Therapies Director & Health Policy Advisor
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Julien Delaye
Patient Engagement Manager - HTA
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Virginie Hivert
Therapeutic Development Director
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Roseline Favresse
Research Policy and Initiatives Director
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Inés Hernando
ERN and Healthcare Director
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Nora Lazaro
ERN and Healthcare Patient Engagement Manager
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Jelena Malinina
Data Director
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Matt Bolz-Johnson
Mental Health & Wellbeing Lead and Healthcare Advisor
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Concha Mayo
Mental Health & Wellbeing Engagement Manager
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Andrea Cembrero Bonet
Patient Engagement Manager
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Maria Cavaller Bellaubi
Patient Engagement & Therapeutic Development Director
maria.cavaller@eurordis.org Read more
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Claudia Fuchs
Drug Repurposing Projects Senior Manager
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Anne-Mary Bodin
Resource Development Assistant
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Judit Baijet
Patient Engagement and Training Manager on the REMEDi4ALL project
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Gulcin Gumus
Research & Policy Senior Manager
gulcin.gumus@eurordis.org Read more
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Marta Campabadal
Open Academy Senior Manager
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Gemma Rodríguez Fabià
Open Academy Training Manager
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Veronica Popa
Digital Patient Engagement Manager
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Jessie Dubief
Social Research Director, Rare Barometer Programme Lead
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Fatoumata Faye
Survey Project Manager for the Rare Barometer Programme
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Rita Francisco
Survey Manager
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Andrea Osvoll (on maternity leave)
Communications Manager - Projects & Programmes
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Brian Howard
Philanthropy & Partnerships Director
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Martina Bergna
Events Senior Manager
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Jessica Knollys
Events Junior Manager
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Céline Schwob
Corporate Relations Director
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Jo Marshall
Corporate and Donor Relations Manager
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Stanislav Ostapenko
Director of Communications
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Julien Poulain
Communications Manager
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Rhiannon Walls
Communications Junior Manager
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Imène El Aini
Web Technology Junior Manager
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Lise Pernin
Communications Junior Manager - Rare Disease Day
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Finance & Support Services
Patrice Régnier
Chief Financial Officer
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Susan Foster
HR Support and Budget Manager
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Corina Puls
Office Manager
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Clément Le Chêne
Office Manager and People Team Support
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