Our team

The 40+ members of the EURORDIS team work across three offices in Paris, Brussels and Barcelona. They represent more than 18 nationalities and speak more than 19 languages.

We all share the vision of EURORDIS to see a world where all people living with a rare disease can have longer and better lives and achieve their full potential, in a society that values their well-being and leaves no one behind.

We are always looking for passionate people to join our mission. Check our careers page for current opportunities.

Governance, Communications, Events and Resource Development

Virginie Bros-Facer Chief Executive Officer
virginie.bros-facer@eurordis.org Read more

Marie Meunier Senior Executive Assistant to the Chief Executive Officer
marie.meunier@eurordis.org Read more

Valentina Bottarelli Head of Policy and Public Affairs
valentina.bottarelli@eurordis.org Read more

Virginie Hivert Head of Therapies and Access
virginie.hivert@eurordis.org Read more

Roseline Favresse Head of Research Policy and Initiatives
roseline.favresse@eurordis.org Read more

Patrice Régnier Head of Finance and Support Services
patrice.regnier@eurordis.org Read more

Anja Helm Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org Read more

Julien Poulain Communications & Policy Liaison Senior Manager
julien.poulain@eurordis.org Read more

Rhiannon Walls Communications Manager & Global Rare Disease Day Lead
rhiannon.walls@eurordis.org Read more

Martina Bergna Events Senior Manager
martina.bergna@eurordis.org Read more

Jessica Knollys Events Junior Manager
jessica.knollys@eurordis.org Read more

Céline Schwob Corporate Relations Director
celine.schwob@eurordis.org Read more

Jo Marshall Corporate and Donor Relations Manager
jo.marshall@eurordis.org Read more

Andrea Osvoll Corporate Relations Manager
andrea.osvoll@eurordis.org Read more

Anne-Mary Bodin Resource Development Assistant
anne-mary.bodin@eurordis.org Read more

Policy and Public Affairs

Valentina Bottarelli Head of Policy and Public Affairs
valentina.bottarelli@eurordis.org Read more

Rosa Castro Public Affairs Director
rosa.castro@eurordis.org Read more

Ariane Weinman Public Affairs Senior Manager
ariane.weinman@eurordis.org Read more

Raquel Castro Social Policy and Initiatives Director
raquel.castro@eurordis.org Read more

Matt Bolz-Johnson ATMP and Mental Health Advisor
matt.bolz-johnson@eurordis.org Read more

Inés Hernando ERN and Healthcare Director
ines.hernando@eurordis.org Read more

Nora Lazaro ERN and Healthcare Patient Engagement Manager
nora.lazaro@eurordis.org Read more

Arianna Colaiuta EU Public Affairs Manager
arianna.colaiuta@eurordis.org Read more

Research Policy and Initiatives

Roseline Favresse Head of Research Policy and Initiatives
roseline.favresse@eurordis.org Read more

Gulcin Gumus Research & Policy Senior Manager
gulcin.gumus@eurordis.org Read more

Zoe Alahouzou Senior Research Manager
zoe.alahouzou@eurordis.org Read more

Veronica Popa Digital Patient Engagement Manager
veronica.popa@eurordis.org Read more

Rita Francisco Patient Engagement Manager, ATMPs & Clinical Research
rita.francisco@eurordis.org Read more

Jessie Dubief Social Research Director, Rare Barometer Programme Lead
jessie.dubief@eurordis.org Read more

Fatoumata Faye Survey Project Manager for the Rare Barometer Programme
fatoumata.faye@eurordis.org Read more

Marta Campabadal Open Academy Senior Manager
marta.campabadal@eurordis.org Read more

Gemma Rodríguez Fabià Open Academy Training Manager
gemma.rodriguez@eurordis.org Read more

Therapies and Access

Virginie Hivert Head of Therapies and Access
virginie.hivert@eurordis.org Read more

Maria Cavaller Bellaubi Patient Engagement & Therapeutic Development Director
maria.cavaller@eurordis.org Read more

Claudia Fuchs Drug Repurposing Projects Senior Manager
claudia.fuchs@eurordis.org Read more

Judit Baijet Patient Engagement and Training Manager on the REMEDi4ALL project
judit.baijet@eurordis.org Read more

François Houÿez Information & Access to Therapies Director & Health Policy Advisor
francois.houyez@eurordis.org Read more

Julien Delaye Patient Engagement Manager - HTA
julien.delaye@eurordis.org Read more

Finance and Support Services

Patrice Régnier Head of Finance and Support Services
patrice.regnier@eurordis.org Read more

Susan Foster HR Support and Budget Manager
susan.foster@eurordis.org Read more

Corina Puls Office Manager and IT Support
corina.puls@eurordis.org Read more

Clément Le Chêne Office Manager and People Team Support
clement.lechene@eurordis.org Read more

Elias Barth Office Manager & Team Assistant
elias.barth@eurordis.org Read more