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Championing the Rare: Building the Engine of an Inclusive European Health UnionOctober 2023Read More
EURORDIS’ Proposal on the Revision of the Orphan Medicinal Products and Paediatric RegulationNovember 2022Read More
International Joint Recommendations to Address Specific Needs of Undiagnosed Rare Disease PatientsMay 2022Read More
No time to lose: Building a data strategy for the European Reference Networks – A EURORDIS contributionMarch 2020Read More
EURORDIS Recommendations on the Integration of European Reference Networks (ERNs) into National Health SystemsFebruary 2019Read More
Centralised Procedure for the Scientific Assessment of the Therapeutic Added Value of Orphan DrugsDecember 2009Read More
Orphan drugs: rising to the challenge to ensure a better future for 30 million patients in EuropeDecember 2009Read More