Inés Hernando

  • ERN and Healthcare Director

Inés Hernan

Inés Hernando joined EURORDIS as ERN and Healthcare Director in February 2018. In this role she is responsible for monitoring the European landscape on rare disease healthcare from a policy and advocacy perspective, managing all related activities. Inés supports the establishment of European Reference Networks (ERNs) leading the EURORDIS team that manages the 24 European Patient Advocacy Groups (ePAGs) that were set up by EURORDIS in 2016 to ensure a meaningful patient advocates’ engagement across all ERN activities.  

Previously she worked for two years at COCIR as eHealth Senior Manager where she led the organisation's work on all topics related to digital health, focusing specifically on issues such as data protection, interoperability and cross-border data flows. She also worked for eight years in the Spanish Electronic Health Record initiative as eHealth Coordinator where she provided overall programme management and help build the programme partners’ ecosystem that included all Regional Health Authorities and the Ministry of Health. 

Inés holds a Master’s in Health Economics, Policy and Management from the London School of Economics.

Telephone: +32 2 274 06 11

La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases