Staff

The 55+ members of the EURORDIS team work across three offices in Paris, Brussels and Barcelona. They represent more than 18 nationalities and speak more than 19 languages.

We all share the vision of EURORDIS to enable better lives and cures for people living with a rare diseases.

Governance, Membership & European Advocacy

Virginie Bros-Facer Chief Executive Officer
virginie.bros-facer@eurordis.org Read more

Marie Meunier Senior Executive Assistant to the Chief Executive Officer
marie.meunier@eurordis.org Read more

Anja Helm Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org Read more

Valentina Bottarelli Public Affairs Director & Head of European Advocacy
valentina.bottarelli@eurordis.org Read more

Solène Jouan EU Public Affairs Manager
solene.jouan@eurordis.org Read more

Raquel Castro Social Policy and Initiatives Director
raquel.castro@eurordis.org Read more

Julie Pernet European Public Affairs Senior Manager
julie.pernet@eurordis.org Read more

Ariane Weinman Public Affairs Senior Manager
ariane.weinman@eurordis.org Read more

Rachel Butcher Public Affairs Manager
rachel.butcher@eurordis.org Read more

Operations & Communications

Michael Wilbur Chief Operating Officer
michael.wilbur@eurordis.org Read more

Rahul Waslekar Operations Junior Manager
rahul.waslekar@eurordis.org Read more

François Houÿez Information & Access to Therapies Director & Health Policy Advisor
francois.houyez@eurordis.org Read more

Julien Delaye Patient Engagement Manager - HTA
julien.delaye@eurordis.org Read more

Virginie Hivert Therapeutic Development Director
virginie.hivert@eurordis.org Read more

Roseline Favresse Research Policy and Initiatives Director
roseline.favresse@eurordis.org Read more

Inés Hernando ERN and Healthcare Director
ines.hernando@eurordis.org Read more

Nora Lazaro ERN and Healthcare Patient Engagement Manager
nora.lazaro@eurordis.org Read more

Jelena Malinina Data Director
jelena.malinina@eurordis.org Read more

Matt Bolz-Johnson Mental Health & Wellbeing Lead and Healthcare Advisor
matt.bolz-johnson@eurordis.org Read more

Concha Mayo Mental Health & Wellbeing Engagement Manager
concha.mayo@eurordis.org Read more

Andrea Cembrero Bonet Patient Engagement Manager
andrea.cembrero@eurordis.org Read more

Maria Cavaller Bellaubi Patient Engagement & Therapeutic Development Director
maria.cavaller@eurordis.org Read more

Claudia Fuchs Drug Repurposing Projects Senior Manager
claudia.fuchs@eurordis.org Read more

Judit Baijet Patient Engagement and Training Manager on the REMEDi4ALL project
judit.baijet@eurordis.org Read more

Gulcin Gumus Research & Policy Senior Manager
gulcin.gumus@eurordis.org Read more

Marta Campabadal Open Academy Manager
marta.campabadal@eurordis.org Read more

Gemma Rodríguez Fabià Open Academy Training Manager
gemma.rodriguez@eurordis.org Read more

Veronica Popa Digital Patient Engagement Manager
veronica.popa@eurordis.org Read more

Jessie Dubief Social Research Director, Rare Barometer Programme Lead
jessie.dubief@eurordis.org Read more

Fatoumata Faye Survey Project Manager for the Rare Barometer Programme
fatoumata.faye@eurordis.org Read more

Rita Francisco Survey Manager
rita.francisco@eurordis.org Read more

Andrea Osvoll (on maternity leave) Communications Manager - Projects & Programmes
andrea.osvoll@eurordis.org Read more

Brian Howard Philanthropy & Partnerships Director
brian.howard@eurordis.org Read more

Martina Bergna Events Senior Manager
martina.bergna@eurordis.org Read more

Jessica Knollys Events Junior Manager
jessica.knollys@eurordis.org Read more

Céline Schwob Corporate Relations Director
celine.schwob@eurordis.org Read more

Anne-Mary Bodin Resource Development Assistant
anne-mary.bodin@eurordis.org Read more

Jo Marshall Corporate and Donor Relations Manager
jo.marshall@eurordis.org Read more

Stanislav Ostapenko Director of Communications
stanislav.ostapenko@eurordis.org Read more

Julien Poulain Communications Manager
julien.poulain@eurordis.org Read more

Rhiannon Walls Communications Junior Manager
rhiannon.walls@eurordis.org Read more

Imène El Aini Web Technology Junior Manager
imene.elaini@eurordis.org Read more

Lise Pernin Communications Junior Manager - Rare Disease Day
lise.pernin@eurordis.org Read more

Finance & Support Services

Patrice Régnier Chief Financial Officer
patrice.regnier@eurordis.org Read more

Susan Foster HR Support and Budget Manager
susan.foster@eurordis.org Read more

Corina Puls Office Manager
corina.puls@eurordis.org Read more

Clément Le Chêne Office Manager and People Team Support
clement.lechene@eurordis.org Read more