Eurordis - Rare Disease Europe

Su di noi

• Our History

• I nostri programmi

• Initiatives

• Who we are

• Staff

• La nostra strategia e il nostro impatto

Come operiamo

• Our Funding

La nostra rete

• Members

• Progetti

• European or international federations for rare diseases

Aree prioritarie

• Politiche per le malattie rare

• Ricerca

• Diagnosi

• Reti di Riferimento Europee

• Treatments

• Assistenza sanitaria olistica

Ottenere informazioni

• What is a rare disease?

• Find Information on Treatments

• Uso Compassionevole

• Pharmacovigilance

• Rare disease personal stories

• Rare diseases in the arts

Trova supporto

• Find a patient organisation

• Rare disease helplines

• Find a specialised Social Service

• Find medical expertise

• Find a community

Con EURORDIS

• Join the EURORDIS Round Table of Companies

• ERTC Risorse

• Sostenere EURORDIS

Con i nostri programmi e iniziative

• Rare Barometer

• EURORDIS Open Academy

• Rare Disease Day

• Find a community

• EURORDIS Community Advisory Board Programme