EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 995 rare disease patient organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.
EURORDIS supports the creation and development of rare disease national alliances and disease-specific European federations and networks.
EURORDIS is supported by its members and by the AFM – Téléthon, the European Commission, corporate foundations and the health industry. EURORDIS was founded in 1997.