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EURORDIS Membership Meeting

Every other year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease.

The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance policies and services for rare disease patients in their country and local communities.

The EURORDIS Membership Meeting provides an opportunity for EURORDIS members to network, share best practices and increase knowledge of issues integral to member organisations and the rare disease community and environment in each member’s country.

EURORDIS Membership Meeting (EMM) 2023

The last EURORDIS Membership Meeting (EMM) took place in Stockholm, Sweden, from 25 to 27 May 2023. The event provided a platform to engaging and lively discussions on the road towards a holistic approach to addressing patient needs and ensuring their full inclusion in society, with much missed in-person opportunities for exchange.

The next EMM will take place in 2025.

EMM in brief

More than 200 participants from across Europe

A variety of capacity-building workshops and training

Stakeholders from across the community

Over the years, the EURORDIS Membership Meeting has grown into a platform for dialogue and exchange, enabling stakeholders like patient organisations, researchers, healthcare professionals, academia and healthcare industry representatives to learn from each other and exchange knowledge to improve the quality of care of people living with a rare disease.

Anja Helm, Senior Manager of Relations with Patient Organisations