Eurordis - Rare Disease Europe

27th EURORDIS Round Table of Companies Workshop: “Patient engagement in the product life-cycle and community advisory boards (CAB)”

Tuesday, 16 October 2018 – Barcelona

The 27th ERTC Workshop of the EURORDIS Round Table of Companies brought together 143 participants from 16 countries around the world.

Discussions at this meeting did not only focus on existing community advisory boards (CABs) and their added value, but also on how to work with patients in new disease areas and start a truly collaborative experience.

The contribution of all attendees played an essential role in this important meeting that succeeded in:

• Communicating which best practices EURORDIS promotes for collaboration between patients and sponsors to develop medicinal products for rare diseases
• Sharing information on the objectives and outcomes of PARADIGM
• Conveying the concept of CABs and the value that CABs can offer (including learning from the experience of existing CABs)

Presentations and Proceedings

Presentations*

* This document is password protected. 

Questions

If you wish to become an ERTC member or if you have any questions, please contact Anne-Mary Bodin: anne-mary.bodin@eurordis.org

Downloads

• 27th Workshop of the EURORDIS Round Table of Companies Final Programme (English)
• 27th Workshop of the EURORDIS Round Table of Companies Proceedings (English)
• 27th Workshop of the EURORDIS Round Table of Companies Concept Paper (English)