Julien Delaye joined EURORDIS in September 2019 as an intern and moved to the position of Public Affairs Assistant on the Rare 2030 project. He then became Public Health Policy Junior Manager and now holds the position of Patient Engagement Manager in HTA.
Working closely with the Director of Information & Access to Therapies & Health Policy Advisor, Julien is responsible for organizing the participation (awareness, training, monitoring) of people living with a rare disease and their representatives in the European Cooperation on HTA and in national HTA procedures, as well as participating in research activities in the HTA field where EURORDIS is invited to take a role.
Prior to EURORDIS, he worked as an event coordinator for European Calcified Tissue Society (ECTS), was a volunteer for Osteogenesis Imperfecta Federation Europe (OIFE) and was a marketing intern at Sanofi – Copenhagen.
Julien holds two bachelor’s degrees, in Marketing (Liège – Campus Guillemins) and in European Public Health (Maastricht University), and a master’s degree in Public Policy and Administration (Dublin – UCD).
He speaks French, English and a bit of Dutch.