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Conect4Children (c4c) brings together pharmaceutical companies, paediatric national networks as well as EU multinational sub-specialty networks, large patient advocacy groups, children’s hospitals and other public research organisations from across Europe. The project aims to facilitate the development of new drugs and other therapies for the entire paediatric population.

Project duration:

May 2018 – April 2024

The consortium

See full list here.

Funding body


EURORDIS role in the project

In all its activities, c4c places patients at the center, ensuring that children and young people, parents and carers participates in all aspects of clinical trials. Many initiatives have been carried out, such as the development of specific training courses for clinical experts and patients, and the promotion of specific paediatric clinical trials. EURORDIS was particularly involved in the Programme Committee of the three c4c Multi-Stakeholder Meetings, where we involved relevant patient experts in the meetings: paediatric Inflammatory Bowel Disease, paediatric Atopic Dermatitis and Medical Devices in Paediatric Type I Diabetes. EURORDIS also led a workshop for patient organisations on pediatric drug development and a follow-up webinar for patient experts about c4c activities which is now available on the c4c website.

EURORDIS priorities on Treatment

Treatments provide relief to people living with a rare disease and their families. A treatment can slow down the progression of a disease, treat the symptoms or cure the disease. They ease the reality of living with a rare disease every day.

Contact person

Maria Cavaller,
Patient Engagement & Therapeutic Development Senior Manager

María Cavaller Bellaubi