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Eurordis - Rare Disease Europe

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Press releases

Press release

Pro Rare Austria and Salzburg University of Education collaboration becomes a cornerstone of the global 2023 Rare Disease Day campaign

Date: Gennaio 13, 2023

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21 Member States endorse Czech EU Presidency’s Call to Action on rare diseases at EPSCO Council Meeting

Date: Dicembre 9, 2022

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Press release

EURORDIS-Rare Diseases Europe elects new Board of Officers

Date: Novembre 25, 2022

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EURORDIS-Rare Diseases Europe responds to Czech Presidency Call to Action on rare diseases calling for a European Action Plan for Rare Diseases

Date: Ottobre 25, 2022

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EURORDIS Chief Executive Officer addresses Health Ministers at WHO to improve access to medicines for rare diseases

Date: Settembre 13, 2022

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REMEDi4ALL, an ambitious EU-funded research initiative, launches to drive forward the repurposing of medicines in Europe

Date: Settembre 1, 2022

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EURORDIS reiterates its call for harmonised newborn screening programmes across Europe at the Czech EU Presidency technical meeting

Date: Luglio 22, 2022

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Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency

Date: Luglio 1, 2022

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Deputy Minister of Health of Ukraine calls for “humanitarian and financial support from pharmaceutical companies and colleagues from EURORDIS” to support Ukrainians with rare diseases in the years to come

Date: Giugno 28, 2022

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Largest patient-led conference kicks off with a call for a coordinated EU strategy on rare diseases

Date: Giugno 27, 2022

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Virginie Hivert, Therapeutic Development Director at EURORDIS, appointed to the Management Board of the European Medicines Agency

Date: Giugno 16, 2022

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EURORDIS-Rare Diseases Europe publishes a Joint Statement with EFPIA on proposals to improve patient access to medicines

Date: Giugno 15, 2022

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