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Press releases

Press release

Award to EURORDIS-Rare Diseases Europe for driving a European Action Plan on rare diseases

Date: Marzo 16, 2023

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Press release

EURORDIS expresses its support for an ECHR case involving cross-border healthcare for a child with a rare disease

Date: Febbraio 28, 2023

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Press release

MEPs call on Commission President to deliver overdue strategy on rare diseases

Date: Febbraio 27, 2023

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Press release

Pro Rare Austria and Salzburg University of Education collaboration becomes a cornerstone of the global 2023 Rare Disease Day campaign

Date: Gennaio 13, 2023

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Press release

21 Member States endorse Czech EU Presidency’s Call to Action on rare diseases at EPSCO Council Meeting

Date: Dicembre 9, 2022

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Press release

EURORDIS-Rare Diseases Europe elects new Board of Officers

Date: Novembre 25, 2022

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EURORDIS-Rare Diseases Europe responds to Czech Presidency Call to Action on rare diseases calling for a European Action Plan for Rare Diseases

Date: Ottobre 25, 2022

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Press release

EURORDIS Chief Executive Officer addresses Health Ministers at WHO to improve access to medicines for rare diseases

Date: Settembre 13, 2022

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Press release

REMEDi4ALL, an ambitious EU-funded research initiative, launches to drive forward the repurposing of medicines in Europe

Date: Settembre 1, 2022

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Press release

EURORDIS reiterates its call for harmonised newborn screening programmes across Europe at the Czech EU Presidency technical meeting

Date: Luglio 22, 2022

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Press release

Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency

Date: Luglio 1, 2022

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Press release

Deputy Minister of Health of Ukraine calls for “humanitarian and financial support from pharmaceutical companies and colleagues from EURORDIS” to support Ukrainians with rare diseases in the years to come

Date: Giugno 28, 2022

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