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Eurordis - Rare Disease Europe

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Press releases

Press release

Award to EURORDIS-Rare Diseases Europe for driving a European Action Plan on rare diseases

Date: mars 16, 2023

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Press release

EURORDIS expresses its support for an ECHR case involving cross-border healthcare for a child with a rare disease

Date: février 28, 2023

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Press release

MEPs call on Commission President to deliver overdue strategy on rare diseases

Date: février 27, 2023

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Pro Rare Austria and Salzburg University of Education collaboration becomes a cornerstone of the global 2023 Rare Disease Day campaign

Date: janvier 13, 2023

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21 Member States endorse Czech EU Presidency’s Call to Action on rare diseases at EPSCO Council Meeting

Date: décembre 9, 2022

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Press release

EURORDIS-Rare Diseases Europe elects new Board of Officers

Date: novembre 25, 2022

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EURORDIS-Rare Diseases Europe responds to Czech Presidency Call to Action on rare diseases calling for a European Action Plan for Rare Diseases

Date: octobre 25, 2022

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EURORDIS Chief Executive Officer addresses Health Ministers at WHO to improve access to medicines for rare diseases

Date: septembre 13, 2022

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REMEDi4ALL, an ambitious EU-funded research initiative, launches to drive forward the repurposing of medicines in Europe

Date: septembre 1, 2022

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EURORDIS reiterates its call for harmonised newborn screening programmes across Europe at the Czech EU Presidency technical meeting

Date: juillet 22, 2022

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Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency

Date: juillet 1, 2022

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Press release

Deputy Minister of Health of Ukraine calls for « humanitarian and financial support from pharmaceutical companies and colleagues from EURORDIS » to support Ukrainians with rare diseases in the years to come

Date: juin 28, 2022

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