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Press releases

Press release

Award to EURORDIS-Rare Diseases Europe for driving a European Action Plan on rare diseases

Date: Março 16, 2023

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EURORDIS expresses its support for an ECHR case involving cross-border healthcare for a child with a rare disease

Date: Fevereiro 28, 2023

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Press release

MEPs call on Commission President to deliver overdue strategy on rare diseases

Date: Fevereiro 27, 2023

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Pro Rare Austria and Salzburg University of Education collaboration becomes a cornerstone of the global 2023 Rare Disease Day campaign

Date: Janeiro 13, 2023

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21 Member States endorse Czech EU Presidency’s Call to Action on rare diseases at EPSCO Council Meeting

Date: Dezembro 9, 2022

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EURORDIS-Rare Diseases Europe elects new Board of Officers

Date: Novembro 25, 2022

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EURORDIS-Rare Diseases Europe responds to Czech Presidency Call to Action on rare diseases calling for a European Action Plan for Rare Diseases

Date: Outubro 25, 2022

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EURORDIS Chief Executive Officer addresses Health Ministers at WHO to improve access to medicines for rare diseases

Date: Setembro 13, 2022

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REMEDi4ALL, an ambitious EU-funded research initiative, launches to drive forward the repurposing of medicines in Europe

Date: Setembro 1, 2022

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EURORDIS reiterates its call for harmonised newborn screening programmes across Europe at the Czech EU Presidency technical meeting

Date: Julho 22, 2022

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Czech Deputy Health Minister calls for a European Union Action Plan on rare diseases, as Czechia takes over the EU Presidency

Date: Julho 1, 2022

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Deputy Minister of Health of Ukraine calls for “humanitarian and financial support from pharmaceutical companies and colleagues from EURORDIS” to support Ukrainians with rare diseases in the years to come

Date: Junho 28, 2022

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