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Press releases

Press release

Largest patient-led conference kicks off with a call for a coordinated EU strategy on rare diseases

Date: Juni 27, 2022

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Virginie Hivert, Therapeutic Development Director at EURORDIS, appointed to the Management Board of the European Medicines Agency

Date: Juni 16, 2022

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Virginie Hivert, Therapeutic Development Director at EURORDIS, appointed to the Management Board of the European Medicines Agency

Date: Juni 16, 2022

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EURORDIS-Rare Diseases Europe publishes a Joint Statement with EFPIA on proposals to improve patient access to medicines

Date: Juni 15, 2022

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EURORDIS and Airbnb.org team up to support people living with a rare disease fleeing the war in Ukraine

Date: April 11, 2022

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New global Rare Barometer survey on the journey to diagnosis for people living with a rare disease

Date: März 21, 2022

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Uniting for the two million Ukrainians living with a rare disease

Date: März 16, 2022

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EURORDIS-Rare Diseases Europe calls on the European Commission for decisive action on rare diseases

Date: Februar 28, 2022

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EURORDIS-Rare Diseases Europe calls on the international community to prepare for a potential crisis and address the challenges of people living with a rare disease in Ukraine

Date: Februar 24, 2022

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Rare Diseases in the global spotlight on 28 February

Date: Februar 16, 2022

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Europe’s Action Plan for Rare Diseases debated in the European Parliament

Date: November 24, 2021

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